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Bartha Knoppers, PhD, Ad.E., O.C., O.Q.

Investigator, RI-MUHC, Glen site

Child Health and Human Development Program

Professor, Department of Human Genetics, Faculty of Medicine, McGill University

 

Keywords


International Human Rights • medical law • pediatrics ethics • population/genomics/biobanking • research ethics

Research Focus


My research focuses on developing ethics frameworks: integrating ethics in biotechnology (biobanking); pediatrics and bioethics; analysing ethical and legal obstacles to the utilisation of electronic and research files (health); proposing ethical and legal policies: creation of databases; building international consortia: harmonisation of principles and proceedings governing data sharing and privacy of medical data.

Selected Publications


Click on Pubmed to see my current publications list

  • Bovenberg J, Knoppers BM, Hansell A, de Hoogh K. Exposing participants? Population Biobanks Go Geo. European Journal of Human Genetics. 2015; doi:10.1038/ejhg.2015.43, 1-2 PMID: 25804402.

  • Bovenberg J, Hansell A, de Hoogh K, Knoppers B. Nature, nurture & exposure: Connecting biobank data with geographic data could yield public and individual health benefits, but risks to human rights need to be assessed. EMBO Reports. 2015; doi 10.15252/embr.201439902, 1-4 PMID: 25744525.

  • Howard HC, Knoppers BM, Cornel M, Wright Clayton E, Sénécal K and Borry P. Whole genome sequencing in newborn screening? A Statement on the continued importance of targeted approaches in newborn screening programmes. European Journal of Human Genetics. 2015; doi.10.1038/ejhg.2014.289, 1-8 PMID: 25626707.

  • Thorogood A, Joly Y, Knoppers BM, Nilsson T, Metrakos P, Lazaris A, Salman A. An Implementation Framework for the Feedback of Individual Research Results and Incidental Findings in Research. Biomed Central. 2014; 15(1):88 doi:10.1186/1472-6939-15-88, 1-22 PMID: 25539799.

  • Knoppers BM. Does policy grow on trees? BMC Medical Ethics. 2014; 15(1):87 doi:10.1186/1472-6939-15-87: 1-3 PMID: 25529505.