Lucyna Lach, MSW, PhD
Childhood disability • family • quality of life • parenting • access
My research focuses on documenting the well-being of children with neurodevelopmental disorders (NDD) and their caregivers. Currently, I am documenting the health-related quality of life and parenting of children with NDDs, as well as factors that make a difference in how those important dimensions are expressed in children's day-to day-lives. In one pan-Canadian study, I am investigating the Quebec subsample on outcome trajectories in children with epilepsy. I am also part of a national team providing leadership and training to four concurrent projects that will contribute to developing and disseminating knowledge about the biopsychosocial context of parenting children with NDDs in Canada. Recently, I have begun to document healthcare provider perspectives on how parents who are raising children with neurodevelopmental disorders in the context of poverty, ethnocultural diversity and sometimes precarious immigration status, experience accessing and receiving services.
Arim RG, Garner RE, Brehaut JC, Lach LM, MacKenzie MJ, Rosenbaum P, Kohen DE. Contextual influences of parenting behaviours for children with neurodevelopmental disorders: Results from a Canadian National Survey. Disability & Rehabilitation, 2012. http://informahealthcare.com/doi/pdf/10.3109/09638288.2012.680650.
Lach LM, Rosenbaum PR, Bailey S, Boggosian A, MacCulloch R (accepted). Parenting a child with cerebral palsy: Family and social issues. In: P. Rosenbaum & L. Rosenbloom (Eds.), Cerebral Palsy: From Diagnosis to Adult Life. London, UK: MacKeith Press.
Lach LM. The family does matter! In: G. Ronen & P. Rosenbaum (Eds.), Life Quality Outcomes in Young People with Neurological and Developmental Conditions, pp. 136-153. London: MacKeith Press, 2013.
Lach LM, Elliot I, Giecko T, Olds J, Snyder T, McCleary L, Whiting S, Lowe A, Nimigon J, Smith ML. Patient-reported outcome of pediatric epilepsy surgery: Social inclusion or exclusion as young adults? Epilepsia 51(10): 2089-2097, 2010.
Lach LM, Kohen DE, Garner RE, Brehaut JC, Miller AR, Klassen AF, Rosenbaum PL. The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders. Disability & Rehabilitation 31(8): 607-618, 2009.