null Ariane Marelli, MD, MPH, FRCPC, FACC, FAHA
health services • epidemiology • congenital heart disease • cardiovascular • cardiology
My team’s research centres on congenital heart disease throughout the lifespan, focusing on health services delivery, quality and policy. Our research tools have included large databases, electronic health records and digital health services interventions for complex care. We spearheaded and manage the Quebec Congenital Heart Disease Database that covers over 150,000 patients with congenital heart disease from birth to old age from 1983 to 2017, one of the largest of its kind worldwide. We work, or have worked, with data from the Canadian Institutes of Health Research, the Center for Disease Control and Prevention in the U.S., and some of the largest congenital heart disease databases in existence internationally. With a wide range of collaborators, we have developed reports of invention for health information technology tools aimed at improving quality of care for congenital heart disease patients. My team’s work informs policymakers in Canada and elsewhere to improve health services delivery models for patients with lifelong conditions.
Marelli AJ, Ionescu-Ittu R, Mackie A, Guo L, Dendukuri N, Kaouache M. Lifetime Prevalence of Congenital Heart Disease in the General Population from 2000 to 2010. Circulation. 2014 Aug 26;130(9):749-56. PMID: 24944314.
Mylotte D, Pilote L, Ionescu-Ittu R, Abrahamowicz M, Khairy P, Therrien J, Mackie AS, Marelli AJ. Specialized Adult Congenital Heart Disease Care: The Impact of Policy on Mortality. Circulation. 2014 May 6;129(18):1804-12 PMID: 24589851.
Mackie AS, Ionescu-Ittu R, Therrien J, Pilote L, Abrahamowicz M, Marelli AJ. Children and adults with congenital heart disease lost to follow-up: who and when? Circulation 2009;120:302-309. PMID: 19597053.
Marelli AJ. The Future of Adult Congenital Heart Disease Research: Precision Health Services Delivery for the Next Decade. Canadian Journal of Cardiology, 2019;35:1609-1619. PMID: 31813496.
Marelli AJ, Perloff J.K: Perloff's Clinical Recognition of Congenital Heart Disease 6th edition. Philadelphia. Elsevier-Saunders ISBN 978-14377-1618-4 year 2012.