health services • epidemiology • congenital heart disease • cardiovascular • cardiology
My research focuses on the impact of the changing epidemiology of congenital heart disease on health services delivery, quality and policy. My research tools have included large administrative databases and electronic health records. I spearheaded and manage a population-based congenital heart disease database that covers over 100,000 patients with congenital heart disease from birth to old age in Quebec, from 1983-2010. I have reports of invention for health information technology tools aimed at improving quality of care for congenital heart disease patients. I work with policy makers in Canada and elsewhere to improve health services delivery models for patients with lifelong conditions.
Marelli AJ, Ionescu-Ittu R, Mackie A, Guo L, Dendukuri N, Kaouache M. Lifetime Prevalence of Congenital Heart Disease in the General Population from 2000 to 2010. Circulation. 2014 Aug 26;130(9):749-56. PMID: 24944314.
Mylotte D, Pilote L, Ionescu-Ittu R, Abrahamowicz M, Khairy P, Therrien J, Mackie AS, Marelli AJ. Specialized Adult Congenital Heart Disease Care: The Impact of Policy on Mortality. Circulation. 2014 May 6;129(18):1804-12 PMID: 24589851.
Rushani D, Kaufman JS, Ionescu-Ittu R, Mackie A, Pilote L, Therrien J, Marelli A. Cumulative Risk of Infective Endocarditis in Children With Congenital Heart Disease - A Population-Based Study. Circulation. 2013 Sep 24;128(13):1412-1419.
Mackie AS, Ionescu-Ittu R, Therrien J, Pilote L, Abrahamowicz M, Marelli AJ. Children and adults with congenital heart disease lost to follow-up: who and when? Circulation 2009;120:302-309. PMID: 19597053.
Marelli AJ, Perloff J.K: Perloff's Clinical Recognition of Congenital Heart Disease 6th edition. Philadelphia. Elsevier-Saunders ISBN 978-14377-1618-4 year 2012.