null Bartha Knoppers, PhD, Ad.E., O.C., O.Q.
governance • genomic medicine • human rights • paediatrics • stem cell research • biomedical ethics • privacy • medical law • comparative medical law and policy
As director of the Centre of Genomics and Policy at McGill University, human genomic research and its clinical applications have provided the main focus for my examination of the ensuing or anticipated ethico-legal issues. Within a comparative, international approach to policymaking, I explore the fields of pediatrics, discrimination, access to and sharing of data, biobanking, stem cell therapies, mHealth, commercialization and ethics review. The goal is to promote and realize the human right of every citizen to benefit from science and its applications.
Bovenberg J, Peloquin D, Bierer B, Barnes M, Knoppers BM. How to fix the GDPR’s frustration of global biomedical research. SCIENCE. 2020; 370(6512): 40-42. PMID: 33004505.
Yotova R, Knoppers BM. The Right to Benefit from Science: What Implications for Big Health Data? European Journal of International Law. 2020; 665-691.
Knoppers BM, Beauvais MJS, Joly Y, Zawati MH, Rousseau S, Chassé M, Mooser V. Modelling Consent in the Time of COVID-19. Journal of Law and the Biosciences. 2020; 7(1): 1-6. PMID: 32728465.
Phillips M, Molnár-Gábor F, Korbel JO, Thorogood A, Joly Y, Chalmers D, Townend D, Knoppers BM. Genomics: data sharing needs international code of conduct. Nature. 2020; 578(7793): 31-33. PMID: 32025008.
Knoppers BM, Greely HT. Biotechnologies nibbling at the legal “human.” SCIENCE. 2019; 366(6472): 1455-1457. PMID: 31857473.