null Watch the video from our May 2016 Café scientifique on Rare Respiratory Diseases, now posted on Canal Savoir
Thank you to Michel Rochon, who moderated the event flawlessly, Sarah Dettmers, who shared her courageous story as a cystic fibrosis patient, and our experts, Drs. Jennifer Landry, Larry Lands, André Cantin, Arnold Kristof and Simon Rousseau.
Rare respiratory diseases: hope, research and the future
Being diagnosed with a rare respiratory disease, be it bronchopulmonary dysplasia, lymphangioleiomyomatosis, alpha-1 antitrypsin deficiency, pulmonary fibrosis, cystic fibrosis, or any other disease, can be extremely challenging. There is often a lack of disease understanding and even treatment options. Today, increased awareness and advocacy for these diseases has led to major advances in research and clinical care.
View the video here