Watch the video from our May 2016 Café scientifique on Rare Respiratory Diseases, now posted on Canal Savoir - Watch the video from our May 2016 Café scientifique on Rare Respiratory Diseases, now posted on Canal Savoir - Research Institute of the McGill University Health Centre
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Thank you to Michel Rochon, who moderated the event flawlessly, Sarah Dettmers, who shared her courageous story as a cystic fibrosis patient, and our experts, Drs. Jennifer Landry, Larry Lands, André Cantin, Arnold Kristof and Simon Rousseau.
Rare respiratory diseases: hope, research and the future
Being diagnosed with a rare respiratory disease, be it bronchopulmonary dysplasia, lymphangioleiomyomatosis, alpha-1 antitrypsin deficiency, pulmonary fibrosis, cystic fibrosis, or any other disease, can be extremely challenging. There is often a lack of disease understanding and even treatment options. Today, increased awareness and advocacy for these diseases has led to major advances in research and clinical care.
View the video here