null Canadian Cerebral Palsy Registry Undergoing Exciting Expansion
Project led by RI-MUHC researcher Maryam Oskoui connects researchers across Canada
June 18, 2019
Source: MedE-News and Kids Brain Health Network. For more than a decade the Canadian Cerebral Palsy Registry has played an innovative and transformative role in cerebral palsy (CP) research by collecting extensive data on the disability and connecting researchers across the country. The registry is now in the midst of an evolution, one which will result in “Registry 2.0”, a platform that addresses new and exciting research questions, includes even more data, and is aimed at being accessible to all Canadians living with CP.
Kids Brain Health Network (formerly NeuroDevNet), along with the Public Health Agency of Canada, funded the registry’s expansion into six provinces, following its initial launch in Quebec in 2003. Today, it includes more than 2,100 participants diagnosed with CP and has resulted in over 35 academic publications. The Network has provided two additional years of funding to help the project, which is led by Dr. Maryam Oskoui, a member of the Child Health and Human Development Program at the Research Institute of the McGill University Health Centre (RI-MUHC), expand even further.