Researcher List - Sidebar Search Title
HIV • adherence • antiretroviral therapy • patient engagement • patient-reported outcome measures • mHealth • HCV • men who have sex with men • HIV prevention
My research interests are especially centred on innovating HIV care through stakeholder engagement and the use of patient-centred mobile health technologies. I am currently developing a new patient-reported outcome measure for electronic administration during routine HIV care focused on patient-identified barriers to adhering to antiretroviral therapy. In partnership with developers of the Opal patient portal, I am adapting Opal for use in both HIV and COVID-19 follow-up. Furthermore, with a team from the Polytechnique de Montréal, I am creating a chatbot to conversationally help answer pragmatic questions people living with HIV may have about their antiretroviral therapy. The patient experience of HIV care is also a prominent theme of my research, including among HIV-positive newcomers to Quebec. My research program is affiliated with my CIHR Strategy for Patient-Oriented Research (SPOR) Mentorship Chair, which enables trainees to gain experience with stakeholder engagement in research.
Gomolin, A., Lebouché, B., Engler, K., Vedel, I. (2019). Optimizing smartphone intervention features to improve chronic disease management: A rapid review. Health Informatics Journal, doi: 10.1177/1460458219891377. PMID: 31826703.
Engler, K., Ahmed, S., Lessard, D. Vicente, S., Lebouché, B. (2019). Assessing the content validity of a new patient-reported measure of barriers to antiretroviral therapy adherence for electronic administration in routine HIV care: Proposal for a web-based Delphi study. JMIR Research Protocols, 8(8), e12836. doi: 10.2196/12836. PMID: 31376275.
Engler, K., Toupin, I., Vicente, S., Ahmed, S., Lebouché, B. (2019). A review of HIV-specific patient-reported measures of perceived barriers to antiretroviral therapy adherence: what themes are they covering? Journal of Patient-Reported Outcomes, 3, 37. Link to free eprint: https://doi.org/10.1186/s41687-019-0124-3. PMID: 31250222.
Lessard, K., Engler, K., Toupin, I., I-Score Consulting Team, Routy, J.-P., Lebouché, B. (2019). Evaluation of a project to engage patients in the development of a patient-reported measure for HIV care (the I-Score Study). Health Expectations, 22, 209–225. doi: 10.1111/hex.12845. PMID: 30375111.
Engler, K., Lènàrt, A., Lessard, D., Toupin, I., Lebouché, B. (2018). Barriers to antiretroviral therapy adherence in developed countries: a qualitative synthesis to develop a conceptual framework for a new patient-reported outcome measure. AIDS Care, 30(sup1):17-28. doi: 10.1080/09540121.2018.1469725. PMID: 29719990.